For people with genetic mutations linked to ALS, like this author, government cuts to research funds have been devastating.
For almost a decade, I’ve fought for a cure for a disease I don’t even have yet.
In 2018, when my mom was dying of the fatal neurodegenerative disease amyotrophic lateral sclerosis (ALS), I learned that I carried the same mutated gene, C9orf72, that ... [5199 chars]