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Our baby was totally healthy until 8 months - now he’ll likely die by age 10 due to a rare disorder even his neurologist had never heard of

Our baby was totally healthy until 8 months - now he’ll likely die by age 10 due to a rare disorder even his neurologist had never heard of
health9/23/2025

“I was having dreams of planning his funeral,” Kelsey Drury told The Post.

Jack Drury came out swinging. Born at just 33 weeks, the preemie shocked doctors by breathing on his own and leaving the NICU for his New Jersey home just 17 days later. “They reassured us that he would be fine,” his mom, Kelsey Drury, told The Post.... [6893 chars]